Support Groups

 

Support Groups all over the country our coming together! These groups, run by volunteers, will provide PANDAS patients and family members an opportunity to share their advice and tips for coping/living with PANDAS.

 

Much can be learned at a support group meeting, whether it is patient-to-patient sharing or listening to an informative presentation by a healthcare professional or other expert. We encourage you – if your family is suffering from this life-changing disorder or diagnosed with PANDAS – to attend a support group meeting in your area.”

 

We have the following parents already starting support groups in various parts of the country. If you live nearby one of these groups and would like to participate or if you would like to start a PANDAS support group in your area please contact us.

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Connecticut (Southern)
Lynn Haber

Florida


Michigan
Rachel Helinski

North Carolina (Charlotte)
Claire Bowles

Connecticut (Southern)
Lynn Haber

 

Telephone Contacts

 

We have numerous local volunteers throughout the United States and Canada who can provide one-on-one support and information by telephone. These contact persons are parents of PANDAS who are knowledgeable about PANDAS syndrome. They will provide information, especially about day-to-day living, coping strategies, education and support, all by telephone.

 

If you are interested in getting in touch with a contact volunteer, please contact the foundation.